Welcome to Ride For Lupus, an annual charity motorcycle ride in support of the SickKids Foundation at the Hospital for Sick Children where 100% of the proceeds of this event go directly to the Pediatric Lupus Research unit at HSC (Hospital for Sick Children).
*information provided directly from Dr. Earl Silverman, MD, FRCPC
HSC diagnoses between 60-70 new cases of Lupus in children and adolescents each year.
SickKids follows between 200-250 patients with Lupus throughout the course of any given year.
Dr. Silverman (lead in the department of pediatrics at HSC) has treated over 650 children with Lupus since he began working at SickKids over 25 years ago.
SickKids sees more Lupus patients than any other hospital or facility in the world including institutions for adults with Lupus
20% of those Lupus diagnoses occur before the age of 18
Lupus is present in 1/1000 Caucasian women
Lupus is present in 1/500 non-Caucasian women
Prevalence rates of Lupus are 5x less common with men
Lupus is a chronic illness. The cause is unknown, and there is no cure. This nickname for the illness is the disease of 1000 faces because the symptoms vary so drastically from patient to patient, and is often a challenge for doctors to diagnose. Patients can live for years with this disease and not have the proper treatment due to a misdiagnosis or Lupus simply not being recognized.
Lupus is an autoimmune disease where the bodys immune system becomes hyperactive and attacks normal, healthy tissues; this results in symptoms such as inflammation, swelling and damage to joints, skin, kidneys, blood, heart, lungs, brain (causing cognitive dysfunction), and other organs. Along with chronic fatigue, muscle weakness is also an issue. With this, general stiffness occurs all over the body, is quite painful and doing simple movements with limbs can be a major task.
Under normal function, the immune system makes proteins called antibodies in order to protect and fight against antigens (a substance capable of inducing a specific immune response) such as viruses and bacteria. Lupus makes the immune system unable to differentiate between antigens and healthy tissue. This leads the immune system to direct antibodies against the healthy tissue, not just the antigens, causing swelling, pain, and tissue damage (just to name a few). For more information about lupus, please visit www.lupuscanada.org
Having being diagnosed myself at a young age, it is my hope that with your help we will be able to conquer this disease in our lifetime. Please check out the upcoming Events, Register and Donate links above. Note that a donation does not register you for the event, as these must be done separately.
On Friday May 31st, 2013, we presented Dr. Silverman with a check from Ride For Lupus in the amount of $4,427.35, (*we were given a last min extra cheque to bring our grand total to $5,107.35!) directly to the Pediatric Lupus Research Unit at the Hospital for Sick Kids, in support of the SickKids Foundation. Because in the increased number of deaths in older women due to complications with Lupus and the cardiovascular system, they are currently focusing their research on Lupus and the cardiovascular system in kids, to see how this can be prevented from being a complication later in life. This directly affects me personally, and quite frankly, scares me silly. Dr. Silverman was my doctor when I was a patient at Sick Kids and once he told me that, I felt like I was a 14 year old kid, scared out of my mind and asked him to just fix it now please. He smiled, gave me a hug that made me cry on cue, and told me they're working on it as hard and as fast as they can.
Every single cent counts. Together, we'll fix this. THANK YOU to ALL who donated to this cause; you ARE making a difference. Much love to you all. ~Jenn
I thank you for your generosity, and look forward to the sound of revving engines and polished chrome, all for an excellent cause! See you at the Ride!Welcome to Ride For Lupus, an annual charity motorcycle ride in support of the SickKids Foundation at the Hospital for Sick Children where 100% of the proceeds of this event go directly to the Pediatric Lupus Research unit at HSC (Hospital for Sick Children).